A Mother's Story Part 2

If you haven't read my post from February 2018, A Mother's Story, check it out. Also, a post about James' birth can be read here. There's lots more info also early on in our blog about our NICU experience at SickKids and Rouge Valley as well as our stay at Ronald McDonald House.

We have a cancellation date!

We have more good news! Last week we shared that we had been given an earlier SDR date for February 2020 and there was still chance of an earlier date if a cancellation became available. Well... yesterday we recevied very exciting news. James is now scheduled for SDR surgery on October 31, 2019! How amazing is that? We are so thankful for this news. Mike will have a great birthday present (along with my sister and brother-in-law who all share the same birthday) on October 28th. That is James' pre-op appointment in St. Louis. Our last day of outpatient physiotherapy in St. Louis will be November 26th so we will be in St. Louis for a month. Thank you for your prayers about this very specific request! We are so thrilled!

James' therapy schedule hasn't slowed down at all this summer. This week he had Medek and occupational therapy at SMILE therapy for kids in Vaughan, physiotherapy at Grandview in Ajax, speech therapy and horse back riding (also known has hippotherapy) at WindReach Farm. Today we go for an assessment at Grandview for their therapeutic recreation program. This guy keeps us busy!

The stander we're currently using. We're getting fitted for a different type at the end of the month. Also, a good use of Mike's Shakespeare Anthology for establishing the incline needed

Shae always wants to be next to her brother!

Sibling love

Shae is 20 months and full of energy!

SDR Surgery Update

We are so thrilled to update you all that we have been bumped up on the St. Louis SDR wait list to February 2020! We are so thankful for this! We’re still on the wait list so there’s a chance we could get an even earlier date. We’ll see! But for now, we are feeling the blessing of the many prayers that have been focused for this specific request.

James has been at Conductive Education camp each morning for the last couple weeks and loving it! Last week was a pirate theme. He’s been in a group of about 8 kids ranging in age. It’s been cool to see him with older kids (10 years old) to look up to.

We enjoyed some time on Lake Vernon with my grandparents and cousins, Emma and Jake, on Canada Day. The kids enjoyed boating with Grandpa and swimming! And Shae was very interesting in Annie the dog but didn’t want to get too close to her!

We will be trying out some new standers for James at the end of this month. The one we are using now isn’t the best for James. We’re looking for one that keeps James more upright and legs wide apart (abducted is the physio term) for his hip health. James is on hip surveillance as his hip X-ray last year showed 30% subluxation on both sides (meaning his hip bone is 30% out of the socket). Of course this is concerning and a reason to get as much weight bearing activity as possible (why the stander is very needed for his hip development). We will keep you posted as to what the X-ray results are next month. We hope that nothing has changed from a year ago.

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